Shouting in to the Google void

When I got the diagnosis of subglottic tracheomalacia. I sat there bleary-eyed and not really able to take stuff in. I’d just had a bronchoscopy which involves shoving a thin flexible tube (about the width of one of your finest HB pencils) up your nose and down in to the back of your throat. ThisContinue reading “Shouting in to the Google void”

I’m 28 years old and my Dad blow-dried my hair today

I’m not talking about a professional curly blow that left my locks all glossy and bouncy, nor am I talking about a sleek straight blow dry finish. I’m talking about a messy but functional blow dry from a man who loves me dearly but who doesn’t believe in the power of using a nozzle toContinue reading “I’m 28 years old and my Dad blow-dried my hair today”

It’s a bit like the Truman Show

Over the last couple of weeks, I’ve been feeling very much like a bewildered Jim Carrey when he finds out that his life is actually a reality TV show. To illustrate this more accurately, I’ll describe some of the details of what has happened including the ‘juicy bit’ which includes a lovely hospital stay. TheContinue reading “It’s a bit like the Truman Show”

It’s just not working

I’ve always distantly appreciated The Verve. As a band, they’ve got some pretty powerful songs that have a nice familiarity to them whenever I hear them. I particularly like ‘Bitter Sweet Symphony’ on long car journeys through dramatic scenery, makes me feel all invincible. Anyway, one of their other hits ‘Drugs Don’t Work’ has beenContinue reading “It’s just not working”

Paranoid or prepared?

September is ‘Back2School’ time of year. It’s when social media floods with photos of children in over-sized school uniforms they’ll probably never grow in to. It’s when Clarks turns in to school shoe war-zone and it’s the month you see more cars on the motorway that are full to bursting with IKEA’s finest selection ofContinue reading “Paranoid or prepared?”

Everyone loves being listened to

Me included! Last week I had my first hospital trip of the season although unlike the football, I was hoping to delay kick off until at least September. It was the first visit (not counting my outpatient season ticket) since my tracheomalacia diagnosis so it felt a bit like a pre-season friendly to test outContinue reading “Everyone loves being listened to”

Trusting my body

I ambitiously set myself a goal in my head of making it through the summer without having any trouble with my breathing. The date (1 September 2018) became more concrete in my mind as I breezed through July without any issues…if I made it to September, the date that marks a new academic year, kidsContinue reading “Trusting my body”

Loads of question marks

I’m a person that really likes looking forward and is usually pretty focused on what will be the ‘next step.’ I don’t quite have a concrete 5 year plan that’s engraved in to stone but I like to have a couple of things to work towards. I guess I generally quite like to feel aContinue reading “Loads of question marks”

Treating a floppy airway

This post is going to throw you back to the days of GCSE Biology, yep I’m gonna talk about osmosis. So… treatment. At the moment, there’s no ‘fix’ for my floppy airway. It’s more of a case of dealing with the symptoms of tracheomalacia and managing them in the best way possible. I’ve mentioned inContinue reading “Treating a floppy airway”

*Cough, cough, cough*

Tracheomalacia in adults isn’t very common, or, it might just be that it isn’t very well diagnosed at the moment. First of all, there’s loads of different things at play that aren’t easy to separate out from one another. Some people have congenital tracheomalacia, they were born with it. This could be due to underlyingContinue reading “*Cough, cough, cough*”